{"id":40094,"date":"2024-09-18T06:30:00","date_gmt":"2024-09-18T04:30:00","guid":{"rendered":"https:\/\/trendsanita.it\/?p=40094"},"modified":"2026-04-14T16:42:46","modified_gmt":"2026-04-14T14:42:46","slug":"the-new-role-of-the-patient-for-the-future-of-healthcare-innovation","status":"publish","type":"post","link":"https:\/\/trendsanita.it\/en\/the-new-role-of-the-patient-for-the-future-of-healthcare-innovation\/","title":{"rendered":"The new role of the patient for the future of healthcare innovation"},"content":{"rendered":"\n<p>With the rapid evolution of healthcare also the role of patients is changing and becoming more and more crucial. <strong>Valentina Strammiello<\/strong>, Director of Strategic Initiatives at the European Patients&#8217; Forum (EPF), shared with Trendsanit\u00e0 an in-depth overview of how the organisation is changing the role from passive-patient to active-patient. The EPF, an umbrella organisation that in turn includes European and national patient organisations, is dedicated to promoting and giving patients a voice in healthcare decision-making processes.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Looking to the new Europe<\/h2>\n\n\n\n<p>In April 2023, the EPF presented for the first time its <a href=\"https:\/\/www.eu-patient.eu\/globalassets\/manifesto-it.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Manifesto<\/a> for the patient movement in Europe, outlining the advocacy strategy that will cover the next decade. During the organisation&#8217;s 20th anniversary event, objectives and guidelines for active patient involvement in health policies were defined. Valentina Strammiello proudly stated to our microphones: \u00abActive engagement, dialogue and patient involvement will be our guiding stars for the next decade. The patient must be involved at all levels of health policy\u00bb.<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignleft size-medium\"><img decoding=\"async\" width=\"300\" height=\"257\" src=\"https:\/\/trendsanita.it\/wp-content\/uploads\/2024\/08\/Valentina_Strammiello-300x257.jpg\" alt=\"\" class=\"wp-image-40090\" srcset=\"https:\/\/trendsanita.it\/wp-content\/uploads\/2024\/08\/Valentina_Strammiello-300x257.jpg 300w, https:\/\/trendsanita.it\/wp-content\/uploads\/2024\/08\/Valentina_Strammiello-150x129.jpg 150w, https:\/\/trendsanita.it\/wp-content\/uploads\/2024\/08\/Valentina_Strammiello.jpg 415w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><figcaption class=\"wp-element-caption\">Valentina Strammiello<\/figcaption><\/figure>\n<\/div>\n\n\n<p>During the last <a href=\"https:\/\/elections.europa.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">European elections<\/a>, which saw the reconfirmation of Ursula von der Leyen as President of the European Commission, the <a href=\"https:\/\/action.wemove.eu\/sign\/2024-1-the-european-patients-forum-s-eu-elections-campaign-2024-EN\" target=\"_blank\" rel=\"noreferrer noopener\">#Vote4Patients<\/a> campaign was launched to highlight and reiterate the EPF Manifesto. The campaign aims to promote a stronger and more participatory involvement of patient organisations in EU policy decisions.<\/p>\n\n\n\n<p>\u00abThe aim of the campaign is to ensure that patients \u2018voices are heard and respected during the new 2024-2029 mandate\u00bb says Strammiello, and in this regard he reminds that on 16 October 2024, in Brussels, the European Patients&#8217; Forum will host an <a href=\"https:\/\/www.eu-patient.eu\/Events\/upcoming-events\/high-policy-event\" target=\"_blank\" rel=\"noreferrer noopener\">event<\/a> entitled \u201cTowards a patient-centred EU mandate: Health policy with and for patients\u201d. This will be an opportunity to discuss and promote issues on patient engagement and their central role in European health policies.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">The future of Patient Involvement<\/h2>\n\n\n\n<p>In the new millennium, communication strategies make it possible to reach an ever-wider audience and to actively involve citizens, and patients in this case, in political decisions. In this context, <strong>the EPF uses various communication and interaction tools with European institutions to promote patients&#8217; priorities<\/strong>. \u00abPatient involvement is recognised as essential and fundamental\u00bb says Strammiello, emphasising how this change represents a turning point in new awareness-raising and active participation campaigns.<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>In the past, through <a href=\"https:\/\/www.salute.gov.it\/portale\/p5_1_2.jsp?lingua=italiano&amp;id=195\" target=\"_blank\" rel=\"noreferrer noopener\">Joint Actions<\/a> EPF played a crucial role in promoting patient involvement at the European level, ensuring that their voices were heard and integrated into decision-making processes. These transnational project collaborations have enabled the EPF to bring the patients&#8217; perspective to key topics such as health technology assessment, chronic disease management, patient safety and the implementation of digital solutions in healthcare.<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>\u00abIt is a cultural change that we have been advocating for these years, not only for greater equity and transparency, but above all for the emergence of healthcare systems that are more responsible and accountable to patient needs\u00bb says an excited Strammiello.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Patient education and the future of European patients<\/h2>\n\n\n\n<p>\u00abPatient education is one of the key points of our Manifesto. Health and digital literacy within patient communities is more necessary today than ever before\u00bb Strammiello says, linking to the innovative aspects of patient education that the EPF is pursuing. In collaboration with the Catholic University and other partners, EPF is supporting the <a href=\"https:\/\/www.eu-patient.eu\/capacity-building-programme\/master-in-international-patient-advocacy-management\/\" target=\"_blank\" rel=\"noreferrer noopener\">Level II Master&#8217;s Degree<\/a> in International Patient Advocacy Management, now in its second edition beginning in February 2024, with more than half of the places (18 of 30) open to patient representatives. \u00abAs EPF we are trying to build capacity and skills among patients to improve their involvement in the complex world of healthcare systems\u00bb Strammiello concludes.<\/p>\n\n\n\n<div style=\"height:20px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>With a programme that aims to train qualified patient advocates capable of navigating the complexities of the healthcare system and effectively representing patients&#8217; interests,<strong> the shift from a passive to an active patient model becomes a concrete reality<\/strong>. This change represents a fundamental step towards a more inclusive, equitable and accountable healthcare system, where patients aren\u2019t just recipients of care, but key players in the decision-making process itself.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The European Patients&#8217; Forum aims, through its projects, at a more equal, inclusive and empowered healthcare by encouraging the involvement of patients in European healthcare decisions<\/p>\n","protected":false},"author":3138,"featured_media":40092,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[544],"tags":[571,578,572],"rubrica":[],"speciale":[],"class_list":{"0":"post-40094","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-across-europe-en","8":"tag-across-europe-en","9":"tag-innovation","10":"tag-patients"},"yoast_head":"<!-- This site is optimized with the Yoast 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